Autism Council of Utah
Biannual Meeting
May 9, 2008
Granite Education Center
2500 South State Street
Salt Lake City, Utah (801) 646-5000
Auditorium B and C
(no food or drink allowed)
Agenda
10:00 Welcome Business and Recognitions
10:20 Roles of Speech Language Pathologists and Autism
11:20 Committee Reports
11:30 Workgroups, Informing Autism Practices in Utah
12:00 Adjourn
Next biannual meeting: October 10, 2007
Tuesday, April 29, 2008
Utah Walk Now for Autism is only 11 Days Away!
Utah Walk Now for Autism is only 11 Days Away!
Saturday, May 3, 2008
Cottonwood High School - Murray, UT, 9am to 1pm
Register, Volunteer, or Donate
www.WalkNowForAutism.org/Utah!
Wow, the Utah Walk Now for Autism is just around the corner... only a week and a half to go! We hope you are as excited as we are for the big day! To date, there are over 2400 people registered to participate in Utah’s inaugural Walk Now for Autism, over 260 teams and over $142,000 raised. Congratulations! Keep up the hard work! We are well on our way to our goal of $300,000! This walk is going to be one of the largest inaugural walks EVER!
Remember to pre-register everyone who plans to attend Walk Now for Autism. Pre-registering insures we plan accordingly and remember… you must be pre-registered and raise $100 to receive a t-shirt on walk day!
Congratulations to this week’s Top Fundraisers!
Team: The Patten Pride $10,600!
Individual: Amanda Patten with over $7,000!
For a complete list of fundraising efforts, please go to www.WalkNowforAutism.org/Utah.
Event Information
Event Schedule:
9:00 a.m.: Registration and Resource Fair Opens
10:15 a.m.: Opening Ceremonies Begin
10:30 a.m.: 5K Walk Begins
1:00 p.m.: Entertainment and Resource Fair Booths Close
Directions and Parking:
Cottonwood High School
5717 S 1300 E
Salt Lake City, UT 84121
Click Here for a Map and Directions to Cottonwood High School
Free Parking is available in two lots on campus. Please follow the signs on Walk Day to parking. To ease congestion, please consider carpooling with your team.
Walk Route
The walk will be 3 laps around the Cottonwood High School campus, with multiple turn-out areas for those that need to head back to the event space. The entire route is flat and wheelchair and stroller/wagon-friendly.This walk is non-competitive and is not an “endurance” event – please come prepared to enjoy a casual day in the community for families, friends and children!
Important Registration Information
Pre-Register to make Checking in at Walk Now for Autism a breeze!
Check-In at the walk is divided into 3 groups:
EZ Pass: Proceed to this area if you have pre-registered on-line and have no money to turn in on walk-day. If you have raised $100 you will receive a ticket for a t-shirt and you can proceed to the T-shirt Booth and then into the event.
Check In: Proceed to this area if you have pre-registered and need to turn in money. Be sure to bring the envelope you received in the mail with your Walker Welcome Packet. If you forget your envelope or do not have one, there will be envelopes available. You will be asked to fill out a donation form for each donation- make it easy and fill them out ahead of time by downloading the form from your Personal Headquarters. If you have raised $100 you will receive a T-shirt ticket and you can proceed to the T-shirt booth and then into the event.
Registration: Proceed to this are if you or anyone in your family did not register online. You will be asked to fill out a waiver and you can proceed into the event. If you have donations to turn in envelopes and donation forms will be available.
Please note that online registration will close on Friday, May 2nd so that we have time to compile records for our registration personnel on the day of.
Even if you do not have donations to turn in on walk day please remember to check-in. This helps us maintain an accurate head count and if you have raised $100 you will receive your t-shirt ticket!
Donations
If you receive donations in the form of checks please either:
Send them to us, along with a donation form (available at your Personal Headquarters at www.WalkNowforAutism.org) at:
Autism Speaks, Donations
5455 Wilshire Boulevard, Suite 2250
Los Angeles, CA 90036
Or
Fill out a donation form for each donation and bring them on Walk-Day.
If you have any other questions or need additional guidance, please contact us at Autism Speaks at: Utah@autismspeaks.org. Thank you for your commitment to the Utah Walk Now for Autism. We look forward to seeing you on May 3rd!
_________________________
About Walk Now for Autism
Walk Now for Autism, the nation's largest grassroots autism walk program, is Autism Speaks' signature fundraising and awareness event, taking place in communities across the United States, as well as in Canada and the United Kingdom. Powered by volunteers and families with loved ones on the autism spectrum, this successful grassroots fundraising effort not only generates vital funds for autism research but also raises awareness about the increasing prevalence of autism and the need for increased research funding to combat this complex disorder.
About Autism Speaks
Autism Speaks is dedicated to increasing awareness of autism spectrum disorders, to funding research into the causes, prevention, treatments and cure for autism, and to advocating for the needs of affected families. It was founded in February 2005 by Suzanne and Bob Wright, the grandparents of a child with autism. Bob Wright is Vice Chairman, General Electric, and served as chief executive officer of NBC for more than twenty years. Autism Speaks has merged with both the National Alliance for Autism Research (NAAR) and Cure Autism Now (CAN), bringing together the nation's three leading autism advocacy organizations. To learn more about Autism Speaks, please visit www.autismspeaks.org.
Saturday, May 3, 2008
Cottonwood High School - Murray, UT, 9am to 1pm
Register, Volunteer, or Donate
www.WalkNowForAutism.org/Utah!
Wow, the Utah Walk Now for Autism is just around the corner... only a week and a half to go! We hope you are as excited as we are for the big day! To date, there are over 2400 people registered to participate in Utah’s inaugural Walk Now for Autism, over 260 teams and over $142,000 raised. Congratulations! Keep up the hard work! We are well on our way to our goal of $300,000! This walk is going to be one of the largest inaugural walks EVER!
Remember to pre-register everyone who plans to attend Walk Now for Autism. Pre-registering insures we plan accordingly and remember… you must be pre-registered and raise $100 to receive a t-shirt on walk day!
Congratulations to this week’s Top Fundraisers!
Team: The Patten Pride $10,600!
Individual: Amanda Patten with over $7,000!
For a complete list of fundraising efforts, please go to www.WalkNowforAutism.org/Utah.
Event Information
Event Schedule:
9:00 a.m.: Registration and Resource Fair Opens
10:15 a.m.: Opening Ceremonies Begin
10:30 a.m.: 5K Walk Begins
1:00 p.m.: Entertainment and Resource Fair Booths Close
Directions and Parking:
Cottonwood High School
5717 S 1300 E
Salt Lake City, UT 84121
Click Here for a Map and Directions to Cottonwood High School
Free Parking is available in two lots on campus. Please follow the signs on Walk Day to parking. To ease congestion, please consider carpooling with your team.
Walk Route
The walk will be 3 laps around the Cottonwood High School campus, with multiple turn-out areas for those that need to head back to the event space. The entire route is flat and wheelchair and stroller/wagon-friendly.This walk is non-competitive and is not an “endurance” event – please come prepared to enjoy a casual day in the community for families, friends and children!
Important Registration Information
Pre-Register to make Checking in at Walk Now for Autism a breeze!
Check-In at the walk is divided into 3 groups:
EZ Pass: Proceed to this area if you have pre-registered on-line and have no money to turn in on walk-day. If you have raised $100 you will receive a ticket for a t-shirt and you can proceed to the T-shirt Booth and then into the event.
Check In: Proceed to this area if you have pre-registered and need to turn in money. Be sure to bring the envelope you received in the mail with your Walker Welcome Packet. If you forget your envelope or do not have one, there will be envelopes available. You will be asked to fill out a donation form for each donation- make it easy and fill them out ahead of time by downloading the form from your Personal Headquarters. If you have raised $100 you will receive a T-shirt ticket and you can proceed to the T-shirt booth and then into the event.
Registration: Proceed to this are if you or anyone in your family did not register online. You will be asked to fill out a waiver and you can proceed into the event. If you have donations to turn in envelopes and donation forms will be available.
Please note that online registration will close on Friday, May 2nd so that we have time to compile records for our registration personnel on the day of.
Even if you do not have donations to turn in on walk day please remember to check-in. This helps us maintain an accurate head count and if you have raised $100 you will receive your t-shirt ticket!
Donations
If you receive donations in the form of checks please either:
Send them to us, along with a donation form (available at your Personal Headquarters at www.WalkNowforAutism.org) at:
Autism Speaks, Donations
5455 Wilshire Boulevard, Suite 2250
Los Angeles, CA 90036
Or
Fill out a donation form for each donation and bring them on Walk-Day.
If you have any other questions or need additional guidance, please contact us at Autism Speaks at: Utah@autismspeaks.org. Thank you for your commitment to the Utah Walk Now for Autism. We look forward to seeing you on May 3rd!
_________________________
About Walk Now for Autism
Walk Now for Autism, the nation's largest grassroots autism walk program, is Autism Speaks' signature fundraising and awareness event, taking place in communities across the United States, as well as in Canada and the United Kingdom. Powered by volunteers and families with loved ones on the autism spectrum, this successful grassroots fundraising effort not only generates vital funds for autism research but also raises awareness about the increasing prevalence of autism and the need for increased research funding to combat this complex disorder.
About Autism Speaks
Autism Speaks is dedicated to increasing awareness of autism spectrum disorders, to funding research into the causes, prevention, treatments and cure for autism, and to advocating for the needs of affected families. It was founded in February 2005 by Suzanne and Bob Wright, the grandparents of a child with autism. Bob Wright is Vice Chairman, General Electric, and served as chief executive officer of NBC for more than twenty years. Autism Speaks has merged with both the National Alliance for Autism Research (NAAR) and Cure Autism Now (CAN), bringing together the nation's three leading autism advocacy organizations. To learn more about Autism Speaks, please visit www.autismspeaks.org.
Friday, April 25, 2008
U of U Speech Language and Hearing Clinic
This summer at the University of Utah
Speech Language and Hearing Clinic
Social Skills Groups
for children ages 4-10 years old with:
• high functioning autism
and/or
• social communication difficulties
Groups will meet:
1 day per week for 7 weeks
Groups begin the week of 6/18/08
1 ½ hour sessions
Cost: $300 for 7 week session
Small group size for individualized attention
Fun! Fun! Fun!
For more information or to register, please call (801)581-3506
All groups supervised by Lori Krasny, M.S., CCC-SLP
Speech Language and Hearing Clinic
Social Skills Groups
for children ages 4-10 years old with:
• high functioning autism
and/or
• social communication difficulties
Groups will meet:
1 day per week for 7 weeks
Groups begin the week of 6/18/08
1 ½ hour sessions
Cost: $300 for 7 week session
Small group size for individualized attention
Fun! Fun! Fun!
For more information or to register, please call (801)581-3506
All groups supervised by Lori Krasny, M.S., CCC-SLP
Pediatric Occupational Therapy
PEDIATRIC OCCUPATIONAL THERAPIST
SENSORY INTEGRATION
THERAPEUTIC LISTENING
HANDWRITING PRACTICE
FINE-MOTOR-GROSS-MOTOR COORDINATION-STRENGTHENING
SELF-CARE SKILLS INDEPENDENCE
FOCUSING ATTENTION
SOCIAL SKILLS CLASSES
Topics include: Making and Keeping Friends, Positive Personality Attributes, Everyday Etiquette and more.
Crafts, Role Playing, Motor-Activities, Discussions
8-week series, meets weekly for 1 ½ hours
*****PROFESSIONAL QUALITY INDIVIDUALIZED SERVICES*****
*FRIENDLY ATMOSPHERE*
JUST FOR KIDS
PEDIATRIC OCCUPATIONAL THERAPY
Susan Horn OTR/L
801-231-9207
Fax 801-290-2866
Shoshihorn@comcast.net
Centrally located in East Murray (SLC)
Gocitykids.com/browse/attraction.jsp?id=120518
SENSORY INTEGRATION
THERAPEUTIC LISTENING
HANDWRITING PRACTICE
FINE-MOTOR-GROSS-MOTOR COORDINATION-STRENGTHENING
SELF-CARE SKILLS INDEPENDENCE
FOCUSING ATTENTION
SOCIAL SKILLS CLASSES
Topics include: Making and Keeping Friends, Positive Personality Attributes, Everyday Etiquette and more.
Crafts, Role Playing, Motor-Activities, Discussions
8-week series, meets weekly for 1 ½ hours
*****PROFESSIONAL QUALITY INDIVIDUALIZED SERVICES*****
*FRIENDLY ATMOSPHERE*
JUST FOR KIDS
PEDIATRIC OCCUPATIONAL THERAPY
Susan Horn OTR/L
801-231-9207
Fax 801-290-2866
Shoshihorn@comcast.net
Centrally located in East Murray (SLC)
Gocitykids.com/browse/attraction.jsp?id=120518
Thursday, April 24, 2008
Autism Seminar May 14, 2008
The Autism Council of Utah
Presents: A Seminar for Families
LAW ENFORCEMENT:
What Parents of Children with Autism Need to Know and Teach Their Children
About Interacting with Law Enforcement
Wednesday, May 14, 2008
7:00 -9:00 p.m.
Lecture Hall
Division of Services for the Deaf and Hard of Hearing
5709 South 1500 West, Salt Lake City
(For easiest access, park in the south parking lot and enter through the south door)
Guest Speaker: Kyle Anderson
Kyle Anderson is the father of a child with autism and a law enforcement officer. He has presented at the Autism Asperger Educator Conference and for parent groups. His presentation addresses important information that families need to know about what to expect if a person with autism has an interaction with law enforcement. Learn what you should teach your child in case such a situation occurs . Also learn what law enforcement officers can and cannot do when responding to a situation involving a person with special needs.
Question and Answer
Questions from the audience will be addressed.
This presentation is free and open to the public.
Parents are encouraged to attend!
To reserve your seat please pre-register
by contacting the Utah Parent Center
Call 272-1051 or e-mail cassandra@utahparentcenter.org
For more information on the Autism Council of Utah, visit:
www.autismcouncilofutah.org
.
Presents: A Seminar for Families
LAW ENFORCEMENT:
What Parents of Children with Autism Need to Know and Teach Their Children
About Interacting with Law Enforcement
Wednesday, May 14, 2008
7:00 -9:00 p.m.
Lecture Hall
Division of Services for the Deaf and Hard of Hearing
5709 South 1500 West, Salt Lake City
(For easiest access, park in the south parking lot and enter through the south door)
Guest Speaker: Kyle Anderson
Kyle Anderson is the father of a child with autism and a law enforcement officer. He has presented at the Autism Asperger Educator Conference and for parent groups. His presentation addresses important information that families need to know about what to expect if a person with autism has an interaction with law enforcement. Learn what you should teach your child in case such a situation occurs . Also learn what law enforcement officers can and cannot do when responding to a situation involving a person with special needs.
Question and Answer
Questions from the audience will be addressed.
This presentation is free and open to the public.
Parents are encouraged to attend!
To reserve your seat please pre-register
by contacting the Utah Parent Center
Call 272-1051 or e-mail cassandra@utahparentcenter.org
For more information on the Autism Council of Utah, visit:
www.autismcouncilofutah.org
.
Thursday, April 3, 2008
Autism Speaks--Autism Genetic Resource Exchange (AGRE)
Participation in the Autism Genetic Resource Exchange (AGRE)
The Autism Genetic Resource Exchange (AGRE) is an autism research program. Our primary mission is to collect information and blood from families with two or more children affected with an autism spectrum disorder and to make this data available to autism researchers throughout the world, as quickly as possible. Because we want to make your participation as easy as possible, most, if not all, of the data will be collected in your home at a convenient time for you and your family.
The AGRE research program involves various steps. One of the first steps is an in-home visit from a phlebotomist – someone who is certified to draw blood. Our phlebotomists are specially trained to work with children, particularly those with special needs.
A second in-home visit will be scheduled with one of our psychometricians – someone who is certified to administer diagnostic assessments for children with autism spectrum disorders. During this process interviews are conducted and there is some testing directly with your affected children. Most of these activities involve social interaction, games, puzzles, questions, and other things that are generally pretty enjoyable for the children.
After the psychometrician has been to your home, a telephone consultation with one of our pediatric neurologists will be scheduled. The doctor will interview you about every family member’s medical history. This will be done after you have completed the medical history questionnaires about each family member.
There is no cost for you to participate in the AGRE program. As mentioned earlier, each step of the process is conducted in the comfort of your own home. And, your personal information is kept very confidential. Researchers will know you by a coded number; only the AGRE staff will have your personal information.
With your family’s participation, researchers will be able to have more information to help them find the causes of autism. The more families that participate in the AGRE program, the sooner researchers can discover the causes. That’s why your family is so important to us and the entire autistic community.
To find out more about this valuable program and to determine if your family qualifies, please contact Lynne Herod-DeVerges at the toll free number 866-612-2473 ext. 788 or send an e-mail to lheroddeverges@agre.org. You may also want to visit our website at www.familyagre.org.
Our team will be in your area around mid-April 2008 so now is the best time to get involved.
The Autism Genetic Resource Exchange (AGRE) is an autism research program. Our primary mission is to collect information and blood from families with two or more children affected with an autism spectrum disorder and to make this data available to autism researchers throughout the world, as quickly as possible. Because we want to make your participation as easy as possible, most, if not all, of the data will be collected in your home at a convenient time for you and your family.
The AGRE research program involves various steps. One of the first steps is an in-home visit from a phlebotomist – someone who is certified to draw blood. Our phlebotomists are specially trained to work with children, particularly those with special needs.
A second in-home visit will be scheduled with one of our psychometricians – someone who is certified to administer diagnostic assessments for children with autism spectrum disorders. During this process interviews are conducted and there is some testing directly with your affected children. Most of these activities involve social interaction, games, puzzles, questions, and other things that are generally pretty enjoyable for the children.
After the psychometrician has been to your home, a telephone consultation with one of our pediatric neurologists will be scheduled. The doctor will interview you about every family member’s medical history. This will be done after you have completed the medical history questionnaires about each family member.
There is no cost for you to participate in the AGRE program. As mentioned earlier, each step of the process is conducted in the comfort of your own home. And, your personal information is kept very confidential. Researchers will know you by a coded number; only the AGRE staff will have your personal information.
With your family’s participation, researchers will be able to have more information to help them find the causes of autism. The more families that participate in the AGRE program, the sooner researchers can discover the causes. That’s why your family is so important to us and the entire autistic community.
To find out more about this valuable program and to determine if your family qualifies, please contact Lynne Herod-DeVerges at the toll free number 866-612-2473 ext. 788 or send an e-mail to lheroddeverges@agre.org. You may also want to visit our website at www.familyagre.org.
Our team will be in your area around mid-April 2008 so now is the best time to get involved.
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